COPING STRATEGIES BY STROKE CAREGIVERS: EVIDENCE FROM A QUALITATIVE STUDY IN SARAWAK, MALAYSIA

  • Md Mizanur Rahman Faculty of Medicine and Health Sciences, Universiti Malaysia Sarawak, 94300 Kota Samarahan, Sarawak, Malaysia
  • Zabidah binti Putit Faculty of Medicine and Health Sciences, Universiti Malaysia Sarawak, 94300 Kota Samarahan, Sarawak, Malaysia
  • Norliza binti Suut Faculty of Medicine and Health Sciences, Universiti Malaysia Sarawak, 94300 Kota Samarahan, Sarawak, Malaysia
  • Mohamad Taha Arif Faculty of Medicine and Health Sciences, Universiti Malaysia Sarawak, 94300 Kota Samarahan, Sarawak, Malaysia
  • Asri bin Said Faculty of Medicine and Health Sciences, Universiti Malaysia Sarawak, 94300 Kota Samarahan, Sarawak, Malaysia
  • Mohd Raili bin Suhaili Faculty of Medicine, SeGi University and Colleges, Sibu Campus, Sarawak
  • Mohd Fadzillah Faculty of Medicine and Health Sciences, Universiti Sains Islam Malaysia, Bandar Baru Nilai, 71800, Nilai, Negeri Sembilan, Malaysia
  • Zainab binti Tambi Faculty of Medicine and Health Sciences, Universiti Malaysia Sarawak, 94300 Kota Samarahan, Sarawak, Malaysia
  • Ling How Kee Faculty of Social Sciences, Universiti Malaysia Sarawak, 94300 Kota Samarahan, Sarawak, Malaysia
Keywords: Stroke, caregivers, coping strategies, Sarawak

Abstract

Caring for stroke survivors is inevitably a burden to caregivers. It is not uncommon for stroke survivors who are discharged from the hospital and found themselves at home without any help and care from the supposed caregivers. However, in instances where there are available and willing caregivers, a sudden and unpredictable task of caring for stroke survivors require the stroke caregivers to apply their coping strategies due to the demanding nature of looking after a survivor. This study aimed to determine coping strategies undertaken by stroke caregivers in caring for stroke survivors. This was an exploratory qualitative study and data was collected from the caregivers of stroke survivor using a semi-structured guided questionnaire. A total of 18 caregivers were included in the study. The data were collected from November 2015 until June 2016 at a selected community rehabilitation centre in Kuching, Sarawak. The qualitative data analysis revealed that the coping strategies undertaken by stroke caregivers include change of role in life, self-motivation, sharing with other people, crying, trying to forget things that happen, hoping survivors will get better, emotion suppression and self-blame. The study highlighted the experiences by the caregivers for caring for stroke patients and focused on the coping strategies undertaken by the caregivers. Better ununderstanding of these experiences does help the service providers to provide better support and resources for caregivers in caring for stroke survivors.

References

1. Gaziano TA, Bitton A, Anand S, Abrahams-Gessel S, Murphy A. Growing Epidemic of Coronary Heart Disease in Low- and Middle-Income Countries. Curr Probl Cardiol. 2010;35(2):72-115. doi:10.1016/j.cpcardiol.2009.10.002

2. World Health Organization. Cardiovascular diseases (CVDs). World Health Organization. http://www.who.int/news-room/ fact-sheets/detail/ cardiovascular-diseases-(CVDs). Published in 2017. Accessed July 19, 2018.

3. Fisher M, Iadecola C, Sacco R. Introduction to the Stroke Compendium. Circ Res. 2017;120(3):437-438. doi:10.1161/CIRCRESAHA.116.310453

4. Johnson W, Onuma O, Owolabi M, Sachdev S. Stroke: a global response is needed. Bull World Health Organ. 2016;94(9):634-634A. doi:10.2471/BLT.16.181636

5. Kumar R, Kaur S, K R. Burden and coping strategies in caregivers of stroke survivors. J Neurol Neurosci. 2015;6(5):1-5. doi:10.21767/2171-6625.S10005

6. Lazarus RS, Folkman S. Stress, Appraisal, and Coping. 1st edition. New York, USA: Springer Publishing Company; 1984. http://www.springerpub.com/ stress-appraisal-and-coping- 9780826141910.html/. Accessed July 19, 2018.

7. Monteiro NM, Balogun SK, Oratile KN. Managing stress: the influence of gender, age and emotion regulation on coping among university students in Botswana. Int J Adolesc Youth. 2014;19(2):153-173. doi:10.1080/02673843.2014.908784

8. Yu Y, Hu J, Efird JT, McCoy TP. Social support, coping strategies and health-related quality of life among primary caregivers of stroke survivors in China. J Clin Nurs. 2013;22(15-16):2160-2171. doi:10.1111/jocn.12251

9. National Institute of Neurological Disorders and Stroke. Post-stroke rehabilitation fact sheet. https://www.ninds.nih.gov/ Disorders/ Patient-Caregiver-Education/Fact-Sheets/ Post-Stroke- Rehabilitation-Fact-Sheet. Published in 2018. Accessed July 19, 2018.

10. Lazarus RS. Toward better research on stress and coping. Am Psychol. 2000;55(6):665-673.

11. Dijkstra MTM, Homan AC. Engaging in Rather than Disengaging from Stress: Effective Coping and Perceived Control. Front Psychol. 2016;7. doi:10.3389/fpsyg.2016.01415

12. Thorvaldsen P, Kuulasmaa K, Rajakangas AM, Rastenyte D, Sarti C, Wilhelmsen L. Stroke trends in the WHO MONICA project. Stroke. 1997;28(3):500-506.

13. Sacco Ralph L, Kasner Scott E, Broderick Joseph P, et al. An Updated Definition of Stroke for the 21st Century. Stroke. 2013;44(7):2064-2089. doi:10.1161/STR.0b013e318296aeca

14. Godwin KM, Swank PR, Vaeth P, Ostwald SK. The longitudinal and dyadic effects of mutuality on perceived stress for stroke survivors and their spousal caregivers. Aging Ment Health. 2013;17(4):423-431. doi:10.1080/13607863.2012.756457

15. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77-101. doi:10.1191/1478088706qp063oa

16. Bhattacharjee M, Vairale J, Gawali K, Dalal PM. Factors affecting burden on caregivers of stroke survivors: Population-based study in Mumbai (India). Ann Indian Acad Neurol. 2012;15(2):113-119. doi:10.4103/0972-2327.94994

17. Mourad GM, Zaki RA, Ali RA. Improving coping abilities among caregivers of patients with cerebrovascular stroke. J Educ Pract. 2014;5(36):8-20. www.iiste.org/Journals/ index.php/ JEP/article/download/17466/17725.

18. Van den Heuvel ET, De Witte LP, Schure LM, Sanderman R, Meyboom-de Jong B. Risk factors for burn-out in caregivers of stroke patients, and possibilities for intervention. Clin Rehabil. 2001;15(6):669-677. doi:10.1191/0269215501cr446oa

19. Muthucumarana MW, Samarasinghe K, Elgán C. Caring for stroke survivors: experiences of family caregivers in Sri Lanka – a qualitative study. Top Stroke Rehabil. 2018;25(6):397-402. doi:10.1080/10749357.2018.1481353

20. Visser-Meily A, Post M, van de Port I, Maas C, Forstberg-Wärleby G, Lindeman E. Psychosocial functioning of spouses of patients with stroke from initial inpatient rehabilitation to 3 years poststroke: course and relations with coping strategies. Stroke. 2009;40(4):1399-1404. doi:10.1161/STROKEAHA.108.516682
Published
2020-05-01
How to Cite
Md Mizanur Rahman, Zabidah binti Putit, Norliza binti Suut, Mohamad Taha Arif, Asri bin Said, Mohd Raili bin Suhaili, Mohd Fadzillah, Zainab binti Tambi, & Ling How Kee. (2020). COPING STRATEGIES BY STROKE CAREGIVERS: EVIDENCE FROM A QUALITATIVE STUDY IN SARAWAK, MALAYSIA. Malaysian Journal of Public Health Medicine, 20(1), 48-54. https://doi.org/10.37268/mjphm/vol.20/no.1/art.550