CROSS-CULTURAL VALIDATION AND RELIABILITY OF THE MALAY VERSION OF THE DEMENTIA PUBLIC STIGMA SCALE (DEPSS-M) AMONG MALAYSIAN ADULTS
DOI:
https://doi.org/10.37268/mjphm/vol.25/no.2/art.3249Keywords:
dementia, stigma, dementia related stigma, public stigma, validation, reliability, general public, adults, dementia, stigma, dementia-related stigma, public stigma, validation, reliability, general public, adultsAbstract
The prevalence of dementia is predicted to increase in the following decades, but dementia-related stigma continues to exist in the current society. The Dementia Public Stigma Scale (DePSS) was developed to assess this problem. However, it has not been translated and validated among the general public in Malaysia. To better understand the public stigma on dementia within the Malaysian context, we cross-culturally adapt the English version of DePSS into the Malay language. A study was conducted among Malaysian adults attending the Ministry of Health (MOH) primary care health services in Selangor, Malaysia, from May to November 2024. A forward and backward translation was performed, followed by content validation by ten local experts. A total of 35 participants were recruited for the pilot study and test-retest reliability. Exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) were subsequently conducted on 491 participants from diverse backgrounds. The original 16-item with a 5- factor model of DePSS was reduced to 13 items with a 4- factor model in the Malay version of DePSS (DePSS-M). The revised DePSS-M demonstrated good factor loadings (0.60-0.98) with an excellent model fit on CFA ( RMSEA=0.07, GFI=0.93, TLI=0.91, CFI=0.94). The DePSS-M also displayed sufficient convergent (AVE less than 0.5) and discriminant validity ( less than 0.85) across all constructs. The reliability assessment revealed good internal consistency with acceptable Cronbach's alpha (0.78-0.85) and composite reliability (CR) (0.78-0.86). In conclusion, the DePSS-M is a valid and reliable tool that can be used to assess public stigma on dementia in Malaysia. It can also be used to inform local dementia-related policies and direct future stigma reduction strategies.
References
World Health Organization. Dementia Geneva 2023
Alzheimers Disease International. World Alzheimer Report 2019 Attitudes to Dementia. London, England
Alzheimers Disease International. World Alzheimer Report 2015. The Global Impact of Dementia An Analysis of Prevalence, Incidence, Cost and Trends. London, United Kingdom 2015
Abojabel H, Werner P. Exploring family stigma among caregivers of persons with Alzheimers disease The experiences of Israeli Arab caregivers. Dementia. 2019
Browne J, Edwards DA, Rhodes KM, Brimicombe DJ, Payne RA. Association of comorbidity and health service usage among patients with dementia in the UK a population based study. BMJ Open. 2017.
Janbek J, Frimodt Moller N, Laursen TM, Waldemar G. Dementia identified as a risk factor for infection related hospital contacts in a national, population based and longitudinal matched cohort study.
Low L F, Purwaningrum F. Negative stereotypes, fear and social distance a systematic review of depictions of dementia in popular culture in the context of stigma. BMC Geriatrics. 2020
Nguyen T, Li X. Understanding public-stigma and self stigma in the context of dementia. A systematic review of the global literature. Dementia. 2020
Alzheimers Disease International. World Alzheimer Report 2024 Global Changes in Attitudes to Dementia. London, England 2024
Nwadiugwu M. Early onset dementia: key issues using a relationship centred care approach. Postgrad Med J. 2021